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Penacillamine - any one esle out there? Options
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Tarot
#1 Posted : Monday, August 08, 2011 9:21:22 PM Quote
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Joined: 7/6/2011
Posts: 3
Hi,
I am a newly diagnosed RA sufferer- having exhibited symptoms for at least years.... due to liver function tests being unfavourable I have just started Penacillamine. I would appreciate any experiences, successes, pearls of wisdom, side effects etc. Thank you Confused
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dorat
#2 Posted : Monday, August 08, 2011 9:23:28 PM Quote
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Joined: 12/3/2009
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Hi,

Welcome to the forum!
Sorry, I have never been on penicillamine, but I hope it works well for you.

Doreen xx
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Rose-B
#3 Posted : Monday, August 08, 2011 10:33:23 PM Quote
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Hello Tarot

I have posted under the 'other' heading

Rose
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LynW
#4 Posted : Wednesday, August 10, 2011 1:30:48 AM Quote
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Location: Thornton Cleveleys
Hi Tarot

I too posted on the other thread with a couple of links you might find useful.

Penicillamine isn't often used nowadays with the preference being methotrexate or leflunomide. However the possible liver issues will have restricted the choice of drugs suitable for you. It's a drug my consultant considered for me recently as I'm now at the point of second time round but I opted to try methotrexate again. But who knows I could be following in your footsteps ... you might even have started a trend!

Do be careful with the exercise particularly when joints are inflamed. Zumba can be hard going! I quite fancied giving it a go but having watched my daughter I would quite clearly end up in a hospital bed!RollEyes

Lyn x
My son, Ian, completed the BUPA Great North Run on 15th September running for the National Rheumatoid Arthritis Society (NRAS). You can read his story at http://www.justgiving.com/ianlukewilson

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Dorothy-W
#5 Posted : Wednesday, August 10, 2011 9:08:27 AM Quote
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Location: east anglia
im on mtx but would say same as lynn be carefull of zumba i tried it once only done about 3 mins and ended up 3 days off my feet, i also tried belly dancing with a friend and dislocated 2 toes and its a gentle process, i now do the pool thing and so far ok but tired next day.best of luck
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kareniblair
#6 Posted : Wednesday, August 10, 2011 11:08:31 AM Quote
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Posts: 40
Hi there,

I have tried various DMARDS and had to stop due to various side effects. Due to a tendency to develop chest infections, my consultant is reluctant to try me on biologics. As a result of this my consultant put me on Penicillamine in the Autumn of 2010. I have had no side effects as yet. However, it is important to increase the dose very slowly and the drug takes a very long time to have an affect. Each increase takes 3 months to work, if it is going to.

I have not felt any significant improvement on this drug. However, I have also not responded to any of the other ones I tried, so, I think it is me. My consultant assures me that Penicillamine is a very good drug - it has just gone out of fashion because it takes so long to work.

I hope it works for you. Good luck.

Karen
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